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Victor Center for Jewish Genetic Diseases |
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Pictured above: Lois Victor and the directors of the three Victor Centers: (L-R) Dr. Deborah Barbouth, Dr. Jodi Hoffman, Recent EventsThe Polo Club at Delray Beach was the site of the launch for the Victor Center for Jewish Genetic Testing. The Center, housed at the University of Miami Miller School of Medicine, provides genetic testing, education and counseling for those of Ashkenazi Jewish descent. The Center tests for eleven known genetic diseases including Tay-Sachs and Bloom Syndrome. Speakers included Donna Shalala, Lois Victor and Deborah Barbouth, M.D., the director of the Victor Center at the University of Miami.
The MissionThe mission of the Victor Center for Jewish Genetic Diseases at the University of Miami, led by its Director, Dr. Deborah Barbouth, is to raise awareness of Jewish genetic diseases and to provide affordable genetic counseling and screening for healthy individuals at risk of being carriers of a gene mutation for at least one of these diseases. This is accomplished through Jewish community education programs and college campus outreach. The goal of this program is prevention of these devastating genetic diseases, thus making the birth of a child a time of celebration and great joy. The Victor Center for Jewish Genetic Diseases first opened at Albert Einstein Medical Center in Philadelphia in 2002. The Center was founded by Lois B. Victor, a mother who lost two daughters to Familial Dysautonomia. Through the generosity of Lois Victor and other funders, the Victor Center has screened over 2,000 young adults since 2002.The second Center to open is the Floating Hospital for Children at Tufts Medical Center in Boston in 2005. The third center to open is our center at the University of Miami’s Miller School of Medicine in 2007. The Founder
Ms. Victor lost two children to a Jewish genetic disease and is passionate in her mission to ensure that no family endures the heartache of a preventable illness. Through her leadership and support, the Victor Centers serve this purpose, raising awareness and offering clinical expertise in the areas of genetic screening and counseling. The first Center was dedicated in 2002 at Albert Einstein Medical Center in Philadelphia. The second Center was established in 2005 at Tufts New England Medical Center Floating Hospital for Children in Boston. In 2007, the third Center was launched in partnership with the University of Miami Miller School of Medicine. Lois Victor is a native of Boston and a long-time resident of South Florida. For additional information, contact our Outreach Coordinator:
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Lois B. Victor is the Founder of the Victor Centers for Jewish Genetic Diseases in partnership with the Albert Einstein Healthcare Network. Ms. Victor and the Einstein network are dedicated to eradicating Jewish genetic diseases by providing high quality, accessible genetic education, screening and counseling to those at risk.